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Reggie Bibbs and the Just Ask Neurofibromatosis Campaign

Fellow Wikipedia editor and friend, Michaël Laurent, has recently asked me to take part in a great project: to interview Reggie Bibbs on his life with neurofibromatosis. I only wrote a short description of the condition, the work was totally done by Michaël and the interview was conducted by Lou Congelio. You should check out the whole story at WikiNews. Here is an excerpt.

Reggie Bibbs is a 42-year-old-man living in Houston, Texas. Mr Bibbs was born with a genetic disease called neurofibromatosis (NF), which causes him to develop tumours on his body. NF can be a subtle disease, but in Bibbs’ case it has left him with a disfigured face. But he is happy with the way he looks, and doesn’t want to change his appearance to please other people. He has launched a succesful campaign entitled “Just Ask”, and that’s just what Wikinews did in a video-interview.

WN: You told me one time about a teacher in school who did something. Tell me about that.

RB: Right, this was in junior-high and I was in special-ed and we would ride the smaller buses. So one day my bus was late and we were there, a group of kids, waiting for the bus. By this time some of the teachers were leaving. And there was one particular teacher that was leaving, and as he passed by he told me, “Wow, where did you get that thing from?” And I was shocked. He said, “Nevermind, I thought you were wearing a mask.” It really hurt me because it was embarrassing and I had some friends with me — and it was a teacher. And I just felt really let down and betrayed because a teacher said this. And after he realized his mistake he never apologized, and that really hurt me.

reggie_bibbs_just_ask_t-shirt.jpg
The “Just Ask” T-Shirt (Image Credit: WikiNews)

I really believe that the fantastic story of Reggie Bibbs will encourage others to talk about their genetic conditions. It’s crucial to understand them and help them in any ways! Thank you, Reggie! You’re an example!

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14 Comments Post a comment
  1. Reggie Bibbs is an inspiration! How could anyone possibly complain about having a bad day when you weigh the challenges that Reggie faces every day.

    December 28, 2007
  2. Reggie and I went to the Houston Livestock Show and Rodeo this weekend, March 8, 2008. Several people came up to him saying they saw his video on YouTube and told him that he was an inspiration. That he is. A link to these photos are on his blog at reggiebibbs.wordpress.com They are a lot of fun and focus on the positive side of life.

    March 10, 2008
  3. Jeff Bongi #

    Just learned about Reggie tonight, what a guy! His views on life are truly inspirational. There is no other word for it.

    April 29, 2009
  4. byron bautista #

    hola reggi te saludo de guatemala me inspira tu historia,quisiera saber tu correo electronico gracias amigo

    March 14, 2011
  5. victor albisi #

    stay strong.

    March 17, 2011
  6. jeremiah johnston #

    My name is Jeremiah Johnston and i live in Powhatan Va and i have NF1 and i have tumors all over but you cant see mine they are under the skin back in march 14 1997 i have a tumor removed from the brain it was bnine i deal with them since i was 5 but they never stop me from doing my tasks. i seen your talk on the medical channel this evening on march16 2011 I am amoung many that have NF i didnt realize there was NF2 if you can respond to me and let me know how you go about your day to day tasks

    March 17, 2011
  7. Anonymous #

    I just watched his story on TLC and I was so blessed by his strength. May God bless him richly!!!

    March 17, 2011
  8. Anonymous #

    just happened 2 b up late watching the TLC channel on tv. i saw ur story & baby let me tell u & the others on the show u all r so beautiful 2 me!!!! u no, what u call normal people. we get up & cpmplain about this, that or the other…we need 2 keep our mouths shut!!! what we need 2 do is thank God 4 all his blessings big, small & those that havent come yet. Reggie u no GOD is good all the time & all the time God is good. Seek first the kingdom, & all else will b added un2 u.. visiting Maurice was a gr8 venture 4 u im sure. u conqured that feat u will conqure the rest. faith as small a a mustud seed can grow such big & beautiful things.r u familiar with the song by the gospel artist Marvin Sapp..He saw the best in me?..find it & listen 2 it..Some of the words r…He saw the best in me, when every 1 else around, could only c the worst in me. he is mine & i am his, it doesnt matter what i did, he only c”s me 4 who i am. what he c”s is so beautiful. take care, may God Bless u & urs. Thru Christ..All things r possible.Pray, Believe, Trust in God…..ALWAYS, ALWAYS, ALWAYS..HE WILL MAKE A WAY..!!!!!!!!!!!!!!!

    March 17, 2011
  9. Anonymous #

    holla back @ ur new friend!

    March 17, 2011
  10. i watched ur show and man i felt so sorry 4 u that i cried

    April 6, 2011
  11. roda viluan #

    hi!!! Im Roda i live here in phillippines we just watch your medical anomalies from discovery channel. just wanna be ur friend if you dont mind, in your condition i think you need more friends just give you strength to face the world coz you are not alone and what ever you have in your physical appearance it does”nt mean that you are a bad person,!!! God bless and more power!!! just pray and he will be on your side every hour you need him!!!!

    May 26, 2011
  12. Be happy #

    A few days before I watched your story on TLC.At that time I learned that with what ever difficulties you are born with God has given everyone some happiness and a smile to overcome those difficulties with a smile.When things in life changes accept the changes with a smile.You’ll not know when that temporary smile becomes permanent.God will always help you for who you are.You are an inspirational person to every person.God bless you and take care!

    May 27, 2011
  13. Mohit Kumar #

    hi , i m mohit , from india , i see ur program , and my friend i want be ur friend cose i like u so much only in heart and externally also , u r the best,, i wanna be ur friend , i see ur program on discovery channel .

    July 13, 2011
  14. Carol #

    Hi, im from brazil and i whatched in discovery channel the history about reggie and honestly he is an inspiration, his energy and the force that he has , even been somebody “diferent” he is so much strong than people that dont have any problem. As the same time taht he is different, he is a figure that needs to be followed and respected, he doesnt have to be afraid about what people say about him or how people look at him, he is beautiful, he is perfect, im just 15 years old and how i wanna study medicine, i can say that he is a fighter!

    September 27, 2012

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