AccessDNA: Know Your Genetics January 10, 2009
Posted by Bertalan Meskó in DNA, Genetic screening, Genetic testing, Genome, Web 2.0, genetics.Tags: Genetic testing, genetics, Genome
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I’ve recently discovered AccessDNA on Twitter and I thought I should give it a try. On the main page, it says I should create my personalized report. Well, let’s do so.
It asked me about the medical conditions that occurred in my family; environmental factors I have to face; tests I would be interested in, etc. And then I received the personalized genetic report; actually a list of genetic tests that might be useful for me.
What can I do with that information? Yes, of course I want full genome scanning. But should this be my decision? Not the decision of my doctor? Just beacuse I reported to be of Caucasian descent, I should order genetic tests that cost several thousands of dollars?
You know what? I would love to hear the opinion of Steve Murphy here. And yours!
I think that the information helps me understand my options, and is not so much a direct way to get a test. I found the site interesting and informative but the amount of information they provided was almost overwhelming at times. Thanks for sharing this resource!
Well, at least they give this information on genetic consulation here: http://accessdna.com/info/condition.aspx?topic=392 with links. Their “disease database” in rather big and detailed also. What I think is that it would be best for any person to have an appointment before with a geneticist or genetic counselor, to avoid any type of misunderstanding and anxiety that reading that data might bring. It isn’t that easy to interpret “risk data”, not sure if everyone is prepared for this kind of “direct-to-consumer” service.
This is a big DNA database linked to demographics. Nothing that fancy. The information it provides is not nuanced and personalized, that is the problem with this site. Another problem is that it offers you newborn hearing connexin screening and Fragile X testing…..why even offer that to someone who it is not completely appropriate for?
Just plain foolish if you ask me…..
-Steve
http://www.thegenesherpa.blogspot.com
That site gives a lot of information about DNA, since it is the blueprint of life, we should learn more about our own DNA
http://www.promdinurses.com
I will be so glad if you will exchange link with me
I’m hoping you have all heard about The Consumer Genetics Show. Check out the link at consumergeneticsshow.com and feel free to contact me at mault@consumergeneticsshow.com
Thank you! I’m going to check it out now.
[...] should really be called “patient-centered genomic healthcare”. Meanwhile, Berci Mesko trialled a new web service called AccessDNA, which offers a list of targeted genetic screens based on your family history and environmental [...]
DNA This is very big subject.