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Number of Genomes Sequenced July 19, 2010

Posted by Dr. Bertalan Meskó in Genetic testing, genetics, Genome.
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I remember when Hsien-Hsien Lei tried to list all the people who had their genomes sequenced. Here is a more comprehensive list from SNPedia. Now the FuturePundit blog shared some interesting projections about the number of people who would have their genomes sequenced in the future:

  • 2001-2009: A Human Genome
  • 2010: 1,000 Genomes – Learning the Ropes
  • 2011: 50,000 Genomes – Clinical Flirtation
  • 2012: 250,000 Genomes – Clinical Early Adoption
  • 2013: 1 Million Genomes – Consumer Awareness
  • 2014: 5 Million Genomes – Consumer Reality
  • 2015-2020: 25 Million Genomes And Beyond – A Brave New World

The cost of sequencing is still decreasing, but the cost of data analysis and whether it can affect medical decision-making are different questions. Even if many of us thought we would be quite ahead as of now, there is still a long way to go.

Healthcare’s Most Wired Survey July 19, 2010

Posted by Dr. Bertalan Meskó in Health, Health 2.0, Healthcare, Medicine, Medicine 2.0, Web 2.0.
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The 2010 Healthcare’s Most Wired Survey results were just made public. You can download the PDF documents here.

The Most Wired Survey has been redesigned to increase the data’s reliability and improve the usefulness of the results for benchmarking. Major changes include:

  • CIO oversight
  • Advisory board
  • Meaningful use
  • New structure
  • Increased transparency
  • Unlimited recognition

In 2010, to be wired is not a huge surprise for a hospital, but being wireless is a shame. Here are some institutions that really should not be on the Most Wireless list:

  • Memorial Sloan-Kettering Cancer Center, New York (www.mskcc.org)
  • University of California San Diego Medical Center, San Diego (www.health.ucsd.edu)
  • Yale-New Haven Hospital, New Haven, Conn. (www.ynhh.org)

Genes and Society: Cloning via Infographics July 19, 2010

Posted by Dr. Bertalan Meskó in genetics, Infographics.
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My favourite data visualization blog just published a nice infographic about the difference between research cloning and reproductive cloning. Click on the image for full version.

Poyozo: Centralizing Data Flow July 16, 2010

Posted by Dr. Bertalan Meskó in Data, Health 2.0, Infographics, Innovation, Medicine 2.0, Video, Web 2.0.
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In a huge hospital or clinic, the data flow of doctors is enormous. A possible solution might be the centralization of data flow which means they don’t have to check e-mails, news, other services online, but they can do the same in one place. Poyozo could be a potential solution:

Take a moment and think off all the data you put other there on separate Web services. Email, photos, status updates, documents, location, contacts, and the list goes on. Many of the services are really good, but what if they went down? Where would are your data go? Or what if you could bring all that data into one place, so that you didn’t have to login to Flickr, Twitter, Foursquare, and Facebook. Poyozo tries to get all your data in one place – on your own computer – and help “make life make sense.”

European Federation for Medical Informatics and Webicina July 16, 2010

Posted by Dr. Bertalan Meskó in Health, Health 2.0, Medical Search, Medicine, Medicine 2.0, PeRSSonalized Medicine, Web 2.0, Webicina.
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We created the free PeRSSonalized Medicine, the simplest medical information aggregator to help those patients and doctors who would like to be up-to-date easily, but don’t want to learn about RSS. Also it’s available in 11 languages: English, German, Spanish, Portuguese, Dutch, Hungarian, Greek, Polish, French, Italian and Finnish.

Now in co-operation with The European Federation for Medical Informatics, we will have even more languages covered as they have contacts in 32 countries.

The European Federation for Medical Informatics (EFMI) was conceived at a meeting, assisted by the Regional Office for Europe of the World Health Organisation (WHO ), in Copenhagen in September 1976. The representatives of national Health/Medical Informatics societies from ten European countries signed a declaration of intent.

Quartzy: Free lab management for life scientists July 15, 2010

Posted by Dr. Bertalan Meskó in Community Site, e-Science, science, Web 2.0.
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In the lab where I’m doing PhD in genetics had to purchase a lab management software in order to make these processes clear inside the lab. That’s why it’s a shame I only discovered Quartzy, a free lab management tool for life scientists, now.

Quartzy, a company founded by two Columbia University College of Physicians and Surgeons alumni, is garnering wide acceptance in the Life Science community. Quartzy is an online lab management tool that offers a new way to streamline the acquisition and cataloguing of reagents and other supplies that scientists need to conduct experiments. It also offers a standardized mechanism to organize laboratories and improve communication among scientists.

Social Media Journal Club: Wikipedia and Smoking Fetish July 15, 2010

Posted by Dr. Bertalan Meskó in Facebook, Social Media Journal Club, Web 2.0, Wikipedia.
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A few weeks ago I started  a series under the name Social Media Journal Club in which I share peer-reviewed articles that focus on using social media in medicine or healthcare. Enjoy!

The English version of the online encyclopedia, Wikipedia, has been recently reported to be the prominent source of online health information. However, there is little information concerning the quality of information found in Wikipedia. Therefore, we created a questionnaire asking for scope, completeness, and accuracy of information found on osteosarcoma.

This scoping review was designed to map the health literature about HIT used to facilitate communication involving health care providers and caregivers (who are usually family members) of pediatric patients with health conditions requiring follow-up.

This study examined the prevalence, accessibility, and characteristics of eroticized smoking portrayal, also referred to as smoking fetish, on YouTube. The analysis of 200 smoking fetish videos revealed that the smoking fetish videos are prevalent and accessible to adolescents on the website. They featured explicit smoking behavior by sexy, young, and healthy females, with the content corresponding to PG-13 and R movie ratings.

Use of the Internet to communicate with a known health professional is still rare in Europe. Legal context, health policy issues, and technical conditions prevailing in different countries might be playing a major role in the situation. Interest in associated eHealth services is high among citizens and likely to increase.

Abstract Contrasting hypotheses were posed to test the effect of Facebook exposure on self-esteem. Objective Self-Awareness (OSA) from social psychology and the Hyperpersonal Model from computer-mediated communication were used to argue that Facebook would either diminish or enhance self-esteem respectively. The results revealed that, in contrast to previous work on OSA, becoming self-aware by viewing one’s own Facebook profile enhances self-esteem rather than diminishes it.

Health 2.0 News: Palatometer, Telescopic Eye and Google Voice July 14, 2010

Posted by Dr. Bertalan Meskó in Google, Health, Health 2.0, Innovation, Medical Search, Medicine, Medicine 2.0, Technology, Video, Virtuality, Web 2.0, What's on the web?.
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  • MedLibs Round 2.6: Jacqueline at Laikas MedLibLog just published a new blog carnival entry featuring several Scienceroll posts as well.

The American Recovery and Reinvestment Act identified secure patient-physician e-mail messaging as an objective of the meaningful use of electronic health records. In our study of 35,423 people with diabetes, hypertension, or both, the use of secure patient-physician e-mail within a two-month period was associated with a statistically significant improvement in effectiveness of care as measured by the Healthcare Effectiveness Data and Information Set (HEDIS). In addition, the use of e-mail was associated with an improvement of 2.0–6.5 percentage points in performance on other HEDIS measures such as glycemic (HbA1c), cholesterol, and blood pressure screening and control.

Science 2.0: New Community Site July 14, 2010

Posted by Dr. Bertalan Meskó in Community Site, e-Science, science, Web 2.0.
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I’ve recently come across Science 2.0, a new community site that doesn’t want to become a Facebook for scientists, but something different. Here is what Mark Hahnel, the founder, had in mind:

As you know, Science 2.0 is based on real time news and comments, which the users provide. Obviously, places like friend feed do exist and I don’t wish to take anything away from it. The idea of this place though, is a fluid evolving site, where users can suggest, edit or contribute in any way they wish. I’d really like to hear suggestions on what people would like to see, how we can answer the questions that science 2.0 poses collectively. I only started the site last week but the response has been great and the site has evolved quite a lot in a week due to user suggestions. There are several things I am working on in to develop the site, at the forefront of my mind is wikis.

Now it’s added to the extended list of Community Sites for Scientists and Physicians.

PeRSSonalized Medicine: Finnish Social Media Resources July 13, 2010

Posted by Dr. Bertalan Meskó in Health, Health 2.0, Medicine, Medicine 2.0, PeRSSonalized Medicine, Web 2.0, Webicina.
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We launched PeRSSonalized Medicine to help patients and doctors keep themselves up-to-date easily, without any kind of IT knowledge. It is an easy-to-use, free medical information aggregator that lets you select your favourite resources and read the latest news about a medical specialty or condition in one personalized place. We already have 11 national versions.

And now the Finnish version is launched! It does not only mean the platform is in Finnish, but the resources are also the best ones in that language. Please let us know if you want to see PeRSSonalized Medicine in your language.

Many thanks to Marja Silenti (Twitter), e-learning specialist at the Faculty of Medicine, University of Helsinki and Timo Ukkola (Twitter), health and human services informatics professional for the translation and the selection of quality Finnish resources.

Some reasons why PeRSSonalized Medicine is unique:

  • You can search in the database. It means you will find medical information only from a quality selected portion of the world wide web.
  • You can personalize any of the sections.
  • You can also receive the newest Pubmed articles focusing on your search term. Just insert your field of interest, a therapy, a condition, etc. and click Search. Then you can add the newly created box to your personalized medical “journal”.
  • It is a community-based project. Please let us know which quality resources should be added to the database.

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