Would You Volunteer for Google’s Moonshot Medical Study?
The new moonshot project from Google is to create a Google Maps of the human body including molecular and genomic information as well. The Personal Genome Project (PGP) had a similar mission years ago, but this one seems to be even bigger.
The 175 healthy people will go through an exam that includes the collection of body fluids like blood and saliva, after which Google X researchers will review what they have learnt and engage researchers at Duke University and Stanford University for a much larger study.
The eventual aim is for Baseline to act as a reference for the chemistry of a well-run, healthy body, and in turn, identify anomalies far earlier. The hope is that the medicine industry moves more towards prevention rather than treatment in response to illnesses.
A major difference is the institution or company standing behind both projects. The PGP was initiated by Harvard University’s Professor George M. Church, while this new project is launched by Google. I have to note though that Google plans to make the results available for “qualified researchers in health”; data collected will be anonymous and not be shared with insurance companies.
But Dan Munro at Re/code immediately shared his concerns about participating in such a study due to legal risks and the level of trust related to Google.
I’m sure Google wants my genetic data — preferably for free of, course — and will say anything in order to get it. Does that mean that it has earned my trust to use that data as part of an ambiguous, long-term experiment? Not with my genetic data. At least not yet. Thanks for the offer, but no thanks.