There is an amazing and moving story on Paul Levy’s blog about an ex-soldier who got wounded in Israel and an American doctor saved his eye sight. He would like to thank the doctor but could never track her down. Maybe we could.
In 1973, 20-year-old Boaz Tamir was the leader of a defensive tank group on the Golan Heights in Israel when the Syrians attacked. In the course of the battle, he was blinded by shrapnel and taken to the closest hospital for treatment.* That small hospital was in Tiberias and ordinarily would not have had an eye specialist present. But a young American doctor who had been visiting one of the Jerusalem hospitals for clinical rotations was assigned to this hospital in the periphery. It turns out she was very adept at eye surgery and was able to remove the metal particles, and he recovered his eyesight.
Because Boaz left in such a hurry, he never had a chance to thank the doctor. He later tried to track her down but was unable to find her.
To sum it up, we are looking for a doctor who did her clinical rotation in a small hospital in Tiberias in 1973. Please share this message.
A few months ago, I described a project in which a husband tried to crowdsource the diagnosis of his wife. They received so many ideas about the potential diagnosis, that in a new Innocentive campaign they are trying to crowdsource the method with which this huge amount of data could be analyzed.
If you have ideas about it, please join their community!
On August 13, 2012, we launched an InnoCentive Brainstorm Challenge with an unusual goal: to crowdsource a definitive medical diagnosis for a patient whose case has stymied doctors at Stanford, Harvard and the National Institute of Health. More than 1500 Solvers joined our challenge, generating 108 pages of hypotheses for our team of specialists to evaluate. Now, we are returning to ask the Solver community to join us on our new challenge: help us to define the next phase of our journey, to bring us closer to our goal of reaching a definitive diagnosis.
Salvatora Laconesi is an Italian man who recently found out he has brain cancer. Being a good coder, he cracked the code of his medical records and made the data open source so then anyone can analyze it (researchers, medical professionals, artists, etc.). This is the approach ePatient Dave regularly talks about: Let Patients Help!
Here is what happened to him:
- I have a brain cancer.
- I went to get my digital medical records.
- Sadly they were in a closed, proprietary format.
- I cracked them.
- Shared them with everyone.
- 2 of them already replied.
- Grab the information about my disease, if you want, and give me a CURE: create a video, an artwork, a map, a text, a poem, a game, or try to find a solution for my health problem.
- This is a CURE. This is my OPEN SOURCE CURE.
Since my recent keynote (A Geek Doctor Crowdsources Medicine) was published, I’ve been getting requests to find/crowdsource a diagnosis. Just take a look at the mystery of a mum I’ve been writing about in the past couple of days.
Now here is a new mystery. My advice was to present the details on a blog or a wiki. The case is quite interesting, if you have any tips about the diagnosis, please let them know about that on the blog. Thank you!
My recent keynote at the Doctors 2.0 and You event in Paris got a new, catchy title. I talked about how I met the old structures of medical communication and education as a geek and what kind of solutions I implemented through crowdsourcing.
A few days ago, I described the medical mystery of a mother in details and how the husband and now more and more doctors try to help find the diagnosis through crowdsourcing. They created a wiki for listing the potential hypotheses so then anyone can leave comments on them easily.
After ruling out Pheo, they now turn to SLE. What do you think about this?
Today, Simon who I have been writing about for weeks now got a big article in FastCompany about how crowdsourcing can be used for medical purposes and my story (when crowdsourced a diagnosis via Twitter) also got described. I don’t even mention a reporter from TIME magazine asked me more details about it today. Exciting times!
This isn’t the first attempt to crowdsource a medical diagnosis via the Internet. Patients do it all the time on medical message boards. A doctor made headlines two years ago when he crowdsourced a diagnosis on Twitter. And UCLA researchers have created agame to crowdsource malaria diagnoses.