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Posts from the ‘e-patient’ Category

Mayo Clinic Chiefs Name E-Patient Dave as 2015 Visiting Professor

Wonderful news! E-Patient Dave, the leader of the global e-patient movement who gave a talk last year at my Social Media in Medicine university course as well, was named Visiting Professor for Mayo Clinic.

Patient engagement and empowerment is a natural extension of Dr. Will Mayo’s vision of a medicine as a cooperative science. We are therefore honored to announce Dave deBronkart (aka “e-Patient Dave”) as our 2015 Visiting Professor to help spread this powerful message. We look forward to his March, 2015 visit!

Five Expectations For Patients About The Future of Medicine

The waves of technological changes coming towards us will generate new possibilities as well as serious threats to medicine and healthcare. Every stakeholder must prepare for these changes in order to reach a balance between using disruptive technologies in medicine and keeping the human touch. I remain confident that it is still possible to establish that balance and there are reasons for patients to look forward to the next few years in medicine. Here are 5 of them.

1) Health management: The vast majority of people only deal with their health when they get sick. It is due to the fact that it has been really difficult to obtain useful data about our health. Now, the wearable revolution produces a lot of devices that bring health data measurements to our homes. So far, only physicians and hospitals could measure parameters, but today anyone can. Whether it is ECG, blood pressure, pulse, oxygen saturation, EEG or sleep, devices which we can order online provide us with the chance of changing lifestyle based on informed decisions.

Such devices will eventually get smaller and cheaper, and we will hopefully only use them when it is of help.

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AliveCor measures ECG with a smartphone.

2) Partnership: Medicine is a paternalistic system with the doctor being on the top making decisions about the patients. The digital revolution has changed it dramatically as now information, devices and even studies became widely available to anyone with an internet connection. This newly formed partnership makes it possible to be equal with the caregiver and play an equal role in making decisions. This will create an ecosystem in which patients get more possibilities to take care of themselves, while physicians will get help from their own patients. Jackpot. Although, a very old system has to be deconstructed for this.

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3) Communities: Social media is not famous for connecting patients, but several stories proved its potential power in connecting patients with like-minded others. We have done discussed our health concerns with our neighbors before. Now we do the same online without limitations and physical boundaries. Blogs, community sites, forums, Youtube and Twitter channels focus on patients and let them have their voices heard. As Kerri Morrone Sparling said, her doctor is an expert but can only understand what she goes through every single day if he/she is diabetic, otherwise he/she can only guess.

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4) Access to data: The Blue Button movement and E-Patient Dave’s talks encourage people to understand how important it is to own your own health data. It is not only unbelievable but actually outrageous that many hospitals and practices cannot communicate online with each other. Moreover, in others, patients who want to get their own X-Ray image must provide an empty CD disk to get it in the era of digital revolution. As it is not rocket science, we can expect to see major steps forward in this area. Without proper health data, informed medical decisions cannot be made.

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5) Prediction and prevention: Never in the history of medicine patients have had that many opportunities to predict and actually prevent diseases. Anyone can order genetic tests that tell them what rare conditions and mutations they carry and what drugs they are genetically sensitive for. We are not far away from doing a blood test or sequencing genes at home. In this sea of opportunities, the activity and participation of patients are very much needed, In a few years’ time, we will have to deal with the problem of too many choices regarding wearable devices. What is required for making good decisions is knowledge about where we are heading; and skills to make our own assumptions.

If changes happen as expected, patients will benefit the most of a newly constructed and entirely better healthcare system.

My new book, The Guide to the Future of Medicine, includes more details and an actual guide about how to prepare properly for the technological changes.

British Medical Journal Becomes ‘Patients Included’

The concept of the “patients included act” was developed by Lucien Engelen of the REshape Center from the of Radboud University Medical Center in 2010. Conferences featuring actual patients as speakers or attendees could receive this prestigious badge.

Now, Prof. Dr. Melvin Samson, chairman of the Board of the Radboud University Medical Center in Nijmegen awarded the British Medical Journal a special “Patients Included” certificate to acknowledge and encourage their focus on the involvement of patients in the field of medical publishing. Well done!

Read the official announcement here.

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Genentech and PatientsLikeMe Enter Research Collaboration

Having witnessed the development of the globally known patient portal, Patientslikeme, over the last few years, I was not surprised to see the news:

PatientsLikeMe announced today a five-year agreement with Genentech, a member of the Roche Group, to explore use of PatientsLikeMe’s global online patient network to develop innovative ways of researching patients’ real-world experience with disease and treatment. The agreement is the first broad research collaboration between PatientsLikeMe and a pharmaceutical company and provides PatientsLikeMe the opportunity to expand its patient network in oncology.

“We envision a world where patient experience drives the way diseases are measured and medical advances are made. Genentech’s leadership and commitment to this mission brings us closer to having patients at the true center of healthcare,” said PatientsLikeMe Co-founder and Chairman Jamie Heywood. “With Genentech we can now embark on a journey to bring together many stakeholders across healthcare and collaborate with patients in a new way.”

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E-Patient Dave at Semmelweis University: E-Patients Are Hackers of Healtchare

It was a huge pleasure to announce that E-Patient Dave, the world’s leading e-patient, would present in my university course entitled Social Media in Medicine on the 5th of November in Budapest. The presentation took place as a part of the curriculum, but I made the event public so anyone could attend.

Dave gave a great presentation about how e-patients shape the future of healthcare and my students had some interesting questions. He was like a rock star!

RS7672__ZZS1061-scrHere is the recorded video, I hope you will enjoy watching it:

 

The Guide to the Future of Medicine: Download the White Paper with Infographic

Being a medical futurist means I work on bringing disruptive technologies to medicine & healthcare; assisting medical professionals and students in using these in an efficient and secure way; and educating e-patients about how to become equal partners with their caregivers.

Based on what we see in other industries, this is going to be an exploding series of changes and while redesigning healthcare takes a lot of time and efforts, the best we can do is to prepare all stakeholders for what is coming next. That was the reason behind creating The Guide to the Future of Medicine white paper which you can download for free.

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Please use the Twitter hashtag #MedicalFuture for giving feedback.

In the white paper, there is an infographic featuring the main trends that shape the future of medicine visualized from 3 perspectives:

  1. Which stage of the delivery of healthcare and the practice of medicine is affected by that (Prevent & Prepare; Data Input & Diagnostics; Therapy & Follow-up; and Outcomes & Consequences);
  2. Whether it affects patients or healthcare professionals;
  3. The practicability of it (already available – green boxes; in progress – orange boxes; and still needs time – red boxes)

Click here to see the infographic in the original size.

Guide to the Future of Medicine Infographic

I hope you will find the guide useful in your work or in preparing your company and colleagues for the future of medicine.

E-Patient Dave to Present at the Social Media in Medicine University Course in Budapest!

It’s a huge pleasure to announce that E-Patient Dave, the world’s leading e-patient, will present in my university course entitled Social Media in Medicine on the 5th of November in Budapest. The presentation will take place as a part of the curriculum, but I will make the event public so anyone can attend.

Topics: I will talk about the e-patient movement and Dave will talk about his own story with instructions for future doctors.

Where: Semmelweis Medical School, green lecture room, Budapest, Hungary

When: 14:45, 5th of November, 2013

Who can attend: Anyone as long as there are free seats (we are working on projecting the presentation outside the lecture hall as well). There is no registration required.

I’m very glad that my students will learn from the best example of the e-patient movement. Here is the Facebook event page.

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