NHS Confederation released a detailed report about the future trends in social media. You can access the PDF here.
The most recent example of this phenomenon was the turn-ofthe-century vogue for “knowledge management.” The promise of knowledge management was to “enable organisations to know what we know”. Many organisations’ experience of implementing knowledge management programs did yield some useful insights, most notably the potential for virtual web-based communities of interest and communities of practice (insights which can be harvested today to inform and support successful social media-based activities).
Salvatora Laconesi is an Italian man who recently found out he has brain cancer. Being a good coder, he cracked the code of his medical records and made the data open source so then anyone can analyze it (researchers, medical professionals, artists, etc.). This is the approach ePatient Dave regularly talks about: Let Patients Help!
Here is what happened to him:
- I have a brain cancer.
- I went to get my digital medical records.
- Sadly they were in a closed, proprietary format.
- I cracked them.
- Shared them with everyone.
- 2 of them already replied.
- Grab the information about my disease, if you want, and give me a CURE: create a video, an artwork, a map, a text, a poem, a game, or try to find a solution for my health problem.
- This is a CURE. This is my OPEN SOURCE CURE.
This is a really unique idea for raising awareness about one of the symptoms of Alzheimer’s disease, the loss of long-term memory. The Facebook app wiped our Facebook timelines for one day.
An awareness campaign for Alzheimer’s Disease International is asking people to donate their Facebook timeline in support of World Alzheimer’s Day on September 21st. By downloading an app, Facebook users will be able to experience how it feels to lose their memories for a day.
The app will lie dormant until September 21st when it will activate, wiping users’ memories from their timeline including pictures, status, videos, friends, etc. These will be replaced with a message that reads: “Imagine your life without memories. For 36 million people living with Alzheimer’s disease, this is reality.”
Ed Bennett’s famous Health Care Social Media List is now moving to Mayo Clinic where it is going to have a great place, I think.
Four years ago Ed decided to create a resource for social media advocates in hospitals. He thought it would be great if those facing skeptical administrators could begin the conversation with a list of peer institutions already using Facebook, Twitter, or YouTube.
Thus was born the HSNL that Ed has hosted on his Found in Cache blog until now. List maintenance had been a manual labor of love, and yet he didn’t have to programming resources to streamline the process.
When Ed decided he had accomplished his original goal and announced his plans for one final update before achiving the list, we approached him about continuing HSNL. See his thoughts on the move.
Since my recent keynote (A Geek Doctor Crowdsources Medicine) was published, I’ve been getting requests to find/crowdsource a diagnosis. Just take a look at the mystery of a mum I’ve been writing about in the past couple of days.
Now here is a new mystery. My advice was to present the details on a blog or a wiki. The case is quite interesting, if you have any tips about the diagnosis, please let them know about that on the blog. Thank you!
Here is a great infographic to browse on a Saturday morning:
I really liked that, good idea:
We received a lot of requests from people from around the world to create a curated social media selection dedicated to hospice, end-of-life and palliative care. As these topics are quite broad and the number of channels is huge, it was really hard to come up with the list of the very best of them.
Now here it is, relevant, selected and quality social media resources from blogs and podcasts to community sites and Twitter users focusing on hospice and palliative care.
Just like last year, I was a keynote speaker again at the recent Doctors 2.0 and You, the event of the year in the medicine 2.0/health 2.0 space. This year, I came up with a brand new topic: how crowdsourcing helped my way through medical school as a real geek. How crowdsourcing helped me launch and develop Webicina.com that curates medical social media resources and how it helped me develop my digital course about social media in medicine.
As I expected, it was a contentful, informative, interactive conference with all the stakeholders of medicine being represented from e-patients and doctors to nurses and policy makers. Don’t forget to check out the Manifesto and as usual, here are a few photos from my trip.
Cité Universitaire de Paris, the amazing venue
Webicina.com was a media partner
Dr. Andrew Macaulay showed us this bag of letters which were used to make captions on video decades ago (he also brought a VHS cassette). Doing this after Dr Larry Chu presented the video course efforts of Stanford University and Francis Mahmud Namouk presented the international medical video service Streaming Well. Nice contrast.
An amazing e-patient panel with Janine Budding – MedicalFacts, Kathi Apostolidis – ePatient, Beate Bartes – Living Without Thyroid and Sarah Kucharski – ePatient
During my keynote focusing on crowdsourcing in medicine.
See you next year in Paris!