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Posts from the ‘Health’ Category

Sep 28

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Current use, future trends and opportunities in public sector social media

NHS Confederation released a detailed report about the future trends in social media. You can access the PDF here.

The most recent example of this phenomenon was the turn-ofthe-century vogue for “knowledge management.” The promise of knowledge management was to “enable organisations to know what we know”. Many organisations’ experience of  implementing knowledge management programs did yield some  useful insights, most notably the potential for virtual web-based  communities of interest and communities of practice (insights which can be harvested today to inform and support successful social media-based activities).

Sep 27

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A Brain Cancer and Its Open Data: The Cure Through Crowdsourcing

Salvatora Laconesi is an Italian man who recently found out he has brain cancer. Being a good coder, he cracked the code of his medical records and made the data open source so then anyone can analyze it (researchers, medical professionals, artists, etc.). This is the approach ePatient Dave regularly talks about: Let Patients Help!

Here is what happened to him:

  • I have a brain cancer.
  • I went to get my digital medical records.
  • Sadly they were in a closed, proprietary format.
  • I cracked them.
  • Shared them with everyone.
  • 2 of them already replied.
  • Grab the information about my disease, if you want, and give me a CURE: create a video, an artwork, a map, a text, a poem, a game, or try to find a solution for my health problem.
  • This is a CURE. This is my OPEN SOURCE CURE.

Sep 22

2 Comments

Facebook App Wiped Facebook Timeline for Alzheimer Day

This is a really unique idea for raising awareness about one of the symptoms of Alzheimer’s disease, the loss of long-term memory. The Facebook app wiped our Facebook timelines for one day.

An awareness campaign for Alzheimer’s Disease International is asking people to donate their Facebook timeline in support of World Alzheimer’s Day on September 21st. By downloading an app, Facebook users will be able to experience how it feels to lose their memories for a day.

The app will lie dormant until September 21st when it will activate, wiping users’ memories from their timeline including pictures, status, videos, friends, etc. These will be replaced with a message that reads: “Imagine your life without memories. For 36 million people living with Alzheimer’s disease, this is reality.”

Sep 16

1 Comment

The Health Care Social Media List is Moving to mayo Clinic

Ed Bennett’s famous Health Care Social Media List is now moving to Mayo Clinic where it is going to have a great place, I think.

Four years ago Ed decided to create a resource for social media advocates in hospitals. He thought it would be great if those facing skeptical administrators could begin the conversation with a list of peer institutions already using Facebook, Twitter, or YouTube.

Thus was born the HSNL that Ed has hosted on his Found in Cache blog until now. List maintenance had been a manual labor of love, and yet he didn’t have to programming resources to streamline the process.

When Ed decided he had accomplished his original goal and announced his plans for one final update before achiving the list, we approached him about continuing HSNL. See his thoughts on the move.

Aug 7

A New Mystery Awaits Crowdsourcers!

Since my recent keynote (A Geek Doctor Crowdsources Medicine) was published, I’ve been getting requests to find/crowdsource a diagnosis. Just take a look at the mystery of a mum I’ve been writing about in the past couple of days.

Now here is a new mystery. My advice was to present the details on a blog or a wiki. The case is quite interesting, if you have any tips about the diagnosis, please let them know about that on the blog. Thank you!

Jul 28

1 Comment

How Patients Learn in the Digital Age: Infographic

Here is a great infographic to browse on a Saturday morning:

Jul 16

Comic Book About the Secrets of Digital Health Masters

I really liked that, good idea:

Jul 13

1 Comment

Hospice and Palliative Care in Social Media

We received a lot of requests from people from around the world to create a curated social media selection dedicated to hospice, end-of-life and palliative care. As these topics are quite broad and the number of channels is huge, it was really hard to come up with the list of the very best of them.

Now here it is, relevant, selected and quality social media resources from blogs and podcasts to community sites and Twitter users focusing on hospice and palliative care.

Jun 11

From Cyborgs to Nursing Simulations

It’s your brain — you know, that thing that remembers stuff. But because of rapidly evolving information technology, your first impulse was probably to search for the answer on the Internet.

As we become ever more dependent on external sources of memory — using GPS to guide our driving, smartphones to keep our schedules — it’s time to rethink our ideas about what “memory” actually is.

Several weeks after making history with the world’sfirst live-tweeted open heart surgery, Houston’s Memorial Hermann hospital is dusting off its social media chops again.

The plan this time? To live tweet a brain operation performed by one of the world’s foremost neurosurgeons.

It’s the latest — and one of the most extreme — examples of the foul play that takes place on Twitter every day. Although we often tout the benefits of social media for hospitals and health-related businesses, the healthcare social media community isn’t immune to the spamming and scamming part of it too.

Jun 4

6 Comments

Doctors 2.0 and You 2012: Event of the Year

Just like last year, I was a keynote speaker again at the recent Doctors 2.0 and You, the event of the year in the medicine 2.0/health 2.0 space. This year, I came up with a brand new topic: how crowdsourcing helped my way through medical school as a real geek. How crowdsourcing helped me launch and develop Webicina.com that curates medical social media resources and how it helped me develop my digital course about social media in medicine.

As I expected, it was a contentful, informative, interactive conference with all the stakeholders of medicine being represented from e-patients and doctors to nurses and policy makers. Don’t forget to check out the Manifesto and as usual, here are a few photos from my trip.

Cité Universitaire de Paris, the amazing venue

Webicina.com was a media partner

Dr. Andrew Macaulay showed us this bag of letters which were used to make captions on video decades ago (he also brought a VHS cassette). Doing this after Dr Larry Chu presented the video course efforts of Stanford University and Francis Mahmud Namouk presented the international medical video service Streaming Well. Nice contrast.

An amazing e-patient panel with Janine Budding – MedicalFacts, Kathi Apostolidis – ePatient, Beate Bartes – Living Without Thyroid and Sarah Kucharski – ePatient

During my keynote focusing on crowdsourcing in medicine.

See you next year in Paris!

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