We received a lot of requests from people from around the world to create a curated social media selection dedicated to hospice, end-of-life and palliative care. As these topics are quite broad and the number of channels is huge, it was really hard to come up with the list of the very best of them.
Now here it is, relevant, selected and quality social media resources from blogs and podcasts to community sites and Twitter users focusing on hospice and palliative care.
Just like last year, I was a keynote speaker again at the recent Doctors 2.0 and You, the event of the year in the medicine 2.0/health 2.0 space. This year, I came up with a brand new topic: how crowdsourcing helped my way through medical school as a real geek. How crowdsourcing helped me launch and develop Webicina.com that curates medical social media resources and how it helped me develop my digital course about social media in medicine.
As I expected, it was a contentful, informative, interactive conference with all the stakeholders of medicine being represented from e-patients and doctors to nurses and policy makers. Don’t forget to check out the Manifesto and as usual, here are a few photos from my trip.
Cité Universitaire de Paris, the amazing venue
Webicina.com was a media partner
Dr. Andrew Macaulay showed us this bag of letters which were used to make captions on video decades ago (he also brought a VHS cassette). Doing this after Dr Larry Chu presented the video course efforts of Stanford University and Francis Mahmud Namouk presented the international medical video service Streaming Well. Nice contrast.
An amazing e-patient panel with Janine Budding – MedicalFacts, Kathi Apostolidis – ePatient, Beate Bartes – Living Without Thyroid and Sarah Kucharski – ePatient
During my keynote focusing on crowdsourcing in medicine.
See you next year in Paris!
iDoo that I came across at the recent Smartmobil conference aims to become a mobilized personal trainer who even measures your performance. In order to reach this goal, the developers are looking for beta testers. It looks great and I hope a lot of people will sign up through the link below.
iDoo gives you the flexibility to perform the perfect training, anywhere, anytime. The app is based on a patent pending algorithm that uses several sensors of the smartphone to compare the movement of the user with the perfect motion desired by the exercise. The app features several exercises, targeting different muscles and body parts.
We are looking for testers to try out the first 15 warm-up exercises! Apply for the test following the link here, and be among the first users to try this revolutionary fitness app ever.
Prognosis has been one of my favorite Android apps as it helps me keep myself up-to-date whenever I have to stand in a line somewhere. It lets me read patient cases and solve them. The developers just let me know their newest app, Prognosis for Moms for iPads is out! It was designed for pregnant women to help them know more about potential pregnancy-related issues.
Pregnancy is a joyous occasion but the road is not always smooth. A variety of medical conditions can occur along the way – which are all too easily missed.
Prognosis for Moms gives you an in-depth understanding of these issues, via real-world stories presented in a cartoon format.
Mayo Clinic proves again that it has the best social media approach among all healthcare institutions worldwide by releasing a new mobile app for its patients.
The Mayo Clinic Patient app is an easy-to-use tool for navigating your visit while at a Mayo Clinic campus. The app also provides community information, including directions to local restaurants, entertainment, and much more.
Some of the features include:
- Access to request an appointment
- Navigation to amenities on the Mayo Clinic campus as well as in the community
- Up-to-date appointment schedule
- 24/7 access to your lab results and medical record
- Notifications regarding important information
- Up-to-date Mayo Clinic news, publications, and videos
More than a week ago, we all expected something amazing from Facebook as they were about to hold a press conference focusing on a new health-related initiative. Then Facebook announced they would let users mark themselves as organ donors on their own timelines. While it is a nice initiative, I expected much much more from a community site with almost a billion users, to be honest.
“Many of those people — an average of 18 people per day –- will die waiting, because there simply aren’t enough organ donors to meet the need,” Facebook notes in a blog entry explaining the move. “Medical experts believe that broader awareness about organ donation could go a long way toward solving this crisis.”
As the video above explains, designating yourself as an organ donor is easy. All you need to do is go to your Timeline, click on “Life Event” and then “Health & Wellness.” Then, you’ll see the option for “Organ Donor.” At that point, you can add when and where you registered and your personal story.
What about the aftermath, the results?
6000 people registered… Compared to the 1 billion users, we couldn’t say it is a real success. We will see how it evolves. But Facebook must come up with more creative projects.
A few years ago, I wrote a blog post about a weird condition, the exploding head syndrome which generated a huge traffic and about 200 comments. Not short ones, but really interesting, detailed, true patient stories from around the world and my post is now 4th in the global ranking of relevant search results.
Exploding head syndrome is a rare condition that causes the sufferer to occasionally experience a tremendously loud noise as if from within his or her own head, usually described as an explosion or a roar. This usually occurs within an hour or two of falling asleep, but is not the result of a dream. Although perceived as tremendously loud, the noise is usually not accompanied by pain.
That’s how a blog post designed for a specialized audience in a special topic can become a real database of relevant information for patients. Real example of the long tail effect.
An excerpt from one of the comments:
I’m not alone and this is such a relief!!! I think we need a Facebook page. I’ve had this off and on for about 15 years – just had one last night and I’m still out of sorts from it. I awaken terrified with my heart pounding from the sound of an enormous BANG in my head. When this happens I wake up clutching my face – often as I awaken I think “I am dead”. Unlike other people though, I do experience a physical sensation on my face – nose and mouth area – like someone has lightly slapped my face.