Lucien Engelen: Crowdsource your health
A TEDx talk from my friend, Lucien Engelen, who described an amazing area, crowdsourcing in medicine through social media.
Posts from the ‘Ted Talks’ Category
Feb 18
Feb 5
Reinventing Physicians: TED Talk
Dr. Jeff Benabio about reinventing physicians in the 21st century.
For over five years, Dr. Jeff Benabio has been using social media channels to help patients learn about skin health and disease and to help doctors learn about engaging patients more effectively. In his practice Dr. Benabio uses disruptive tools such as telemedicine and mobile devices to improve patient access and reduce medical costs. In his talk he’ll show us how we’re re-inventing medicine with Twitter and Facebook, and why it’s the best thing to happen to medicine since vaccines.
Jan 4
A prosthetic eye to treat blindness: TED Talk
Another interesting TED talk again, this time about prosthetic eyes that could treat blindness.
At TEDMED, Sheila Nirenberg shows a bold way to create sight in people with certain kinds of blindness: by hooking into the optic nerve and sending signals from a camera direct to the brain.
Oct 1
Ben Goldacre: Battling Bad Science
A new TED talk was just published, a perfect video for Saturday:
Every day there are news reports of new health advice, but how can you know if they’re right? Doctor and epidemiologist Ben Goldacre shows us, at high speed, the ways evidence can be distorted, from the blindingly obvious nutrition claims to the very subtle tricks of the pharmaceutical industry.
Sep 2
From self-reported Patient Data to Mobile predictions
- TEDxOverlake – Dr. H. Jack West – Self-Educated Patients and The Future of Cancer Care
“Don’t believe those that say you can’t measure the return on investment (ROI) of digital and social media programs – if you can’t measure it you shouldn’t be doing it…”
He said some GPs already offer consultations via Skype and may interest many others. ‘Then I find myself thinking that’s the sort of thing that will appeal to some people. It would appeal to me,’ he said. He argued it would be much more convenient for patients and GPs.
The Internet was reported to be the second source of health information after physicians, due to its accessibility and “easiness” of use. The most commonly searched types of online health information are treatment/therapy (62% rated it as always or often), detailed (58%) and general (53%) disease descriptions, drug information (51%), side effects (51%) and scientific articles (50%).
Everyday we find PLoS ONE papers in the news. Whether it’s a science blogger in the United Kingdom, an online newspaper in China, or a national news channel in the United States, we see a lot of media coverage on our research articles. In an effort to better track the coverage these papers receive, we’ve begun a Media Tracking Project.
Online patient communities structured around quantitative outcome data have the potential to provide an observational environment to monitor such drug usage and its consequences. Here we describe an analysis of data reported on the website PatientsLikeMe by patients with amyotrophic lateral sclerosis (ALS) who experimented with lithium carbonate treatment.
Aug 9
What happens after your final status update: TED talk
Adam Ostrow has recently talked about what happens when someone with an online presence dies.
Many of us have a social media presence — a virtual personality made up of status updates, tweets and connections, stored in the cloud. Adam Ostrow asks a big question: What happens to that personality after you’ve died? Could it … live on?
Synthetic Life: Craig Venter TED Talk
TEDMED just released the presentation of Craig J. Venter, the father of the human genome project and other interesting initiatives including the race for the synthetic life.
Jul 2
Dave deBronkart: Meet e-Patient Dave
A fantastic TED talk from my friend, E-Patient Dave:
Jun 14
Daniel Kraft: Medicine’s future? There’s an app for that
A recent TED talk just hit Youtube. I saw Daniel Kraft presenting in person at the HQ of the United Nations this February when I attended the Kairos Society meeting and he was fantastic:
Apr 19
From Patients on Facebook to WiFi Enabled Asthma Inhalers
- Facebook friend request from a patient? (The Lancet)
In the USA, birthplace of most of these technological advances, various associations of health-care professionals are starting to issue codes of conduct when dealing with new digital media. Other countries, such as the UK, Canada, and Australia, are also debating what rules should be set. But some doctors believe such codes will have to evolve and adapt as younger generations, used to living an online life from an early age, start to dominate health care and to teach subsequent waves of professionals.
- TEDxPugetSound – Stephen Friend, MD, PhD – True Crowd Sourcing of Medicine: Activating All of Us
But I find the element of human support to be important. For example, recently the FDA issued a black box warning for the concomitant use of Remicade and 6-MP. My representative visited to be sure that I was aware of the changes in the product insert. Sure the information was in my mailbox – along with 6 inches of pulp spam. It’s basic attenionomics: I’m more likely to hear a person than a letter.
If your asthma is acting up, you’re probably not the only one. But unless you’re standing next to someone who is also huffing his or her inhaler, you wouldn’t know it. That’s a problem for epidemiologists who do their best work when they’re buried in data, and it’s exactly the problem a former Centers for Disease Control and Prevention (CDC) researcher aims to solve with a GPS- and WiFi-enabled inhaler.
For the past nine years, this column has presented medical mysteries that doctors eventually solve. Recently, we tried something different: posting a tough-to-diagnose case on well.blogs.nytimes.com and challenging readers to try to figure out what was wrong with the patient. More than 1,300 people responded with a lively combination of questions and answers. Now, you can try to crack the case and follow the crowd-sourced medical conversation.
- NeoTake: A great e-book search engine for medical books as well
