Roni Zeiger, ex-leader of Google Health, and Gilles Friedman, founder of ACOR, teamed up to create Smart Patients and giving a chance to cancer patients to take matters into their own hands.
Smart Patients is an online community where cancer patients and caregivers learn from each other about treatments, clinical trials, the latest science, and how it all fits into the context of their experience.
I presented CureTogether here a few months ago. It plans to bring together patients and scientists to create an open-source health research system. Now they are publishing the first crowdsourced health condition book created by the most active community. It means the book contains a lot of information on vulvodynia, a disorder of vulvar pain, burning, and discomfort:
- 190 women share stories, symptoms, and triggers
- Surprising data on co-morbid conditions
- Detailed comments on treatments by real patients
And! All proceeds from Vulvodynia Heroes go to fund the vulvodynia data community at CureTogether.org.
Before, I said CureTogether looked promising. Now I think it does work.
I’ve recently discovered Blogrize that was created by Jesse Spaulding. It ranks articles by the topics a blog covers, the links between blogs, user attention data, user story recommendations and interaction. See the FAQ page for more info.
BlogRize is a blog community and blog aggregator that brings you today’s most interesting web content by harnessing the collective intelligence of communities of people who enjoy reading the same blogs.
- Provide a superior experience for anyone who wants to check the web daily for interesting news, articles, & videos that relate to them, their friends, and their communities of interest.
- Give authors and content producers a platform where they can quickly and efficiently build a readership and reputation based on the merits of their content and their contributions to the community.
- Foster intelligent & useful discussions and debate between real people.
- Build a reputation system so people can quickly identify authors with expertise, people they can trust, knowledge they can trust.
Feel free to join the Scienceroll community there and let’s see whether it can beat Friendfeed.com.
I’ve been updating my extended list of medical community sites for months and here are a few more additions. It means the full list now contains 33 (!) biomedical community sites with descriptions and screenshots. Feel free to drop me a line if you know more.
- LaboraTree: a social networking tool for scientists and a research management tool. Laboratree allows you to grow your network by joining up with various colleagues, groups, and projects. Laboratree allows you to e-mail or send messages to all parts of your network. Laboratree allows you to manage a personal or group blog. Laboratree’s latest feature allows you to share papers, documents, and other files with other people on Laboratree.
- BioSpace is a social network in biology. It provides the necessary functionality to allow you to share information between people (within group, friends)
- Researcher ID is a global, multi-disciplinary scholarly research community. With a unique identifier assigned to each author in ResearcherID, you can eliminate author misidentification and view an author’s citation metrics instantly. Search the registry to find collaborators, review publication lists and explore how research is used around the world.
- PHYZOOM: you can find the physicians in your community who are staying on top of the latest health trends, products and services. In addition, your search options are much more dynamic than your average physician directory available from your local hospitals and health systems.
- The Science Advisory Board: Voice your opinions on companies, products, protocols and even humor in a lively, real-time, interactive Online Community of over 42,000 life science & medical professionals. Redeem generous rewards for participation in studies, contributing website content and referring colleagues.
- MySDscience: Scientific collaborations, professional development, and science education while raising awareness for the San Diego Science Festival.
- Web of Medicine: it was created for busy clinicians who want to build and join professional networks of medical colleagues. Users have expressed a clear requirement to connect with colleagues in their own practices and hospitals but also nationally and internationally.
- New Media Medicine is an online Social Network of over 42,000 doctors, medical students and pre-med students. It’s like Facebook for medics.
- Asklepios: the social network for physicians created by the Canadian Medical Association. Here you can make new contacts, get advice from colleagues, and collaborate with people all over the country. And it’s exclusively for Canadian physicians, residents and medical students, so you’ll know exactly who you’re connecting with there.
I’ve already written about a few diabetic community sites such as D-Life and TuDiabetes.Now I would like to share two other sites with you:
If you want to know more about the role of web 2.0 tools in diabetes management, check my interview with Kerri Morrone.
Please let me know if you happen to know or use other diabetes communities.