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Posts tagged ‘vulvodynia’

First crowdsourced health condition book by CureTogether

I presented CureTogether here a few months ago. It plans to bring together patients and scientists to create an open-source health research system. Now they are publishing the first crowdsourced health condition book created by the most active community. It means the book contains a lot of information on vulvodynia, a disorder of vulvar pain, burning, and discomfort:

  • 190 women share stories, symptoms, and triggers
  • Surprising data on co-morbid conditions
  • Detailed comments on treatments by real patients

And! All proceeds from Vulvodynia Heroes go to fund the vulvodynia data community at CureTogether.org.

Before, I said CureTogether looked promising. Now I think it does work.

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